iBeastie

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Life Blog – The Radioactive Bead Consultation

  
Today has been a big day for us and I’m pleased to say it has gone well.

The day began with a good omen. We both had a sleepless night because one of our cats Ola went missing last night. Even Alfie came with us as we hunted the streets, calling out with his huge cat voice. To no avail and we went to bed missing Ola at our feet.

Then at 6 am she jumped on the bed and all was well. It was a big deal because not only were we heading to Oxford for a big consultation but we were also heading off to France and Italy for our main Summer holiday! 

Also, I had chemotherapy on Wednesday and a pump connected to my arm had to be disconnected. It looked like it was Oxford, back to Worcester and then off to the Tunnel.

Anyway we headed off and arrived flustered ten minutes late for our appointment. Luckily he was running half an hour late so twenty minutes later we were ushered in. He outlined the treatment after some routine health questions and set the wheels in motion.

It goes like this, as soon as I am back from holiday I go for a CT and an MRI scan. Then I go for two procedures both involving an overnight stay. First is like a dummy run for the real deal. A catheter is inserted up my groin and they block off the blood supply from my liver to nearby organs to stop the radioactivity spreading out and insert a low dose to check its ok. Secondly a week later I return and they repeat the procedure this time inserting the radioactive glass beads. At this point I am radioactive and have to take a week off work to avoid contaminating my work mates! This might be no bad thing because it will also make me very tired at this point.

Anyway we are very pleased to be receiving this treatment it might just add an extra train stop on our one way trip.

On a roll of success I asked if anyone there could disconnect my chemotherapy pump to save us returning to Worcester. They happily did it, saved us a four hour round trip so now here I am at the Tunnel Terminal waiting for my train to France and the start of our holidays. 

While writing this, The Churchill Hospital has sent a text to tell me my scans are to be on Monday 7th September the day after we get back from holiday. Wow they are well organised. We are very impressed.

Scary stuff after our holibobs then, but right now, tea in hand we are happy bunnies looking forward to our Italian adventures in Tuscany and Venice!


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Life Blog – Another Consultation

  
Yesterday we went for our pre chemo consultation to check all was good with me to receive the chemotherapy today. It is, so here I am above just before heading for today’s treatment.

Anyway the consultant had the results back from some tests he had requested on the old tumours that had been taken away. The test was for the presence of KRAS mutation. Basically if this form of mutation is not present then there is another form of treatment that can be quite effective. The good news is that it was not present so I will be switched to this new treatment.

However, I am off to Churchill Hospital in Oxford on Friday to see about the glass bead treatment that I have mentioned in previous blogs. Once we know what is happening there, then the new treatment here will start. 

The main side effect will be a rash making me look like a teenager. Past treatments have tried to make me an old bald man. Now I’m to become a spotty teenager! But what the heck they are all good.

Life meanwhile races on, last weekend saw us at Santapod where we caught up with lots of our old pals from the MINI community, Aston and Debs, RVW and Storm in particular. Even last night saw us catching up with more old pals. So as always there is a lot of fun going on. Mrs P has now retired too  and already we are having so much more time together, which is lovely. 

Friday for example is a crazy day. The morning sees us in Oxford for our consultation. Then late afternoon we are in Worcester to have the chemo pump disconnected and straight after that we head to the Tunnel for a fortnight in France and Italy. There is a chance we might have to come back early if the bead treatment needs to begin within our fortnight away. Hey if that’s the case we’ll drive straight back. 

Pop in here have a read, have a dream and live it. In the time we are away, some of those I love are embarking on fresh adventures with new careers, others are getting married and chasing fresh dreams together. Yet others are cherishing the moments as little bundles of baby joy are rapidly changing their lives, giving them fresh focus and new hopes. You know who you are and I hope you all enjoy every second of what life is bringing you.

Meanwhile I’m doing my best on the fun front!


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Life Blog – Consultation Update

  

Last weekend saw us enjoy a long weekend in Berlin with the fun swinging between bobbing about on Segways to enjoying the stimulation gained from visiting the Helmut Newton Foundation Photography Museum and the Bauhaus Museum – you can read about our weekend here. Chrissie was especially happy as she is now a lady of leisure after finishing work on the Wednesday that we left for Berlin.
This week and reality beckoned, with a consultation on Tuesday and my chemotherapy being hastily rearranged for Friday after me messing up the initial booking for it!

I’m having a few issues at the moment, high blood pressure which seems slow to respond to treatment and an aching back which frankly disturbs me. The consultant checked me over concluding he does not think it is Big C related, so I am thinking it is connected with the high blood pressure. I won’t lie though, I’d like it to go way as it hurts!

Anyway on the plus side, I now have an appointment in Oxford for the glass bead radium treatment that I have mentioned so that is good news. The complication is that it is on the 21st August and we head for the South of France and Italy late that evening. If he wants to crack on with treatment then we will have to postpone the holiday, but hey ho it will we feel be worth it.

As we wait for this appointment we keep ourselves busy and this weekend we are looking forward to a MINI event at Cardiff Bay where we are playing out with our MINI Coupe JCW and also the Elf’s Cooper – which was our first ever MINI – so we are looking forward to this weekend. After our (somewhat in the balance) holiday we have The Goodwood Revival to look forward to and so it goes on.

My head remains full of dreams such as owning a generation 1 MINI GP and after my recent visit to the Bauhaus Museum, I have concluded that this is the perfect Bauhaus car where “form follows function” as all its design elements focus on maximising performance and handling – excellence in these two areas being the essential functional aspirations of the GP. If you haven’t a clue what I am talking about relax you are in good company as I hardly ever know what I’m on about myself. However, for further enlightenment read Day Three of our Berlin adventure!

Join me in living life with lots of smiles and always talk interesting twaddle at every opportunity you get!