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Life Blog – CT Scan Follow Up Consultation

Mr Beastie

Mr Beastie at Shelsley Walsh

I had a further consultation on Tuesday progressing on the treatment options I have moving forward with my battle against the Big C. To re-cap these were, first he is checking on the previously removed tumours. If they have a certain quality about them, then they have a very effective drug for treatment. Secondly, if this isn’t a goer we revert to the very first chemo I had. Thirdly, there is a glass bullets option. Small glass beads thinner than hair are inserted into the tumours via the groin and slow release radiotherapy into the tumour.

To be honest we are not much further on, which is a tad frustrating. The results are still not back on the cancer marker option, so I have a further consultation next Tuesday to find out more on this. I remain on the current chemo, as he doesn’t want to revert to the first chemo and then change me again the next time if the cancer marker option turns up trumps. Finally, regarding the glass bead option, he has now written to Oxford where the treatment is done to refer me for consideration. He seems to think I will get the treatment provided there is no technical obstacle. By this he means that they check with a scan and dye to ensure they can find a route through the veins to the tumour. Two liver re-sections in the past might make this a tricky process but we don’t know until they check. So that is where I am in my long retreat and it makes me think of the Russian army retreating to Moscow under the might of Hitler’s Operation Barbarossa. Can glass beads do what the Russians did and ultimately push Hitler back from the very edges of Moscow?

Whatever Darling you do witter on. Yesterday, I went for my chemo as usual every two weeks but my blood pressure was high, so to be on the safe side I was also given an ECG which proved fine. In my mind I convinced myself that there is so much luuuurve in my heart bursting to get out that it is causing a small issue! I went to the doctor this morning who rechecked my blood pressure confirmed the luuuuurve theory and  consequently supplemented my tablets to correct the high blood pressure.

I’m peddling water then, aware that I have travelled a few stops along the train line, but the house as always remains a fun house. Amelia the Elf is still with us and still adding to the fun pot and recent trips to Croome Hall, Chateau Impney for hill racing and Shelsley Walsh again for hill racing, have all poured out of the fun pot! Delving back into the pot and we have a garden party don’t you know, this weekend with my cousin Lorraine, down from London to keep the fun going before we head to Berlin the weekend after for a four day break. Right now then the BIG C battles around us not us around it but our pragmatism throughout ensures we do not live in denial and we know how the journey runs.

On to more important matters, my hair is thinning considerably but a further trim is needed to give it a little bounce darlings, so that is my Saturday morning treat before our posh garden party at friends in Worcester. Our love for all things MINI has been rejuvenated by spending shed loads of dosh on minor mods to our Paceman and MINI Coupe JCW, with front LED daytime running lights for both and auxiliary water temp and torque gauges for the Coupe. Driving lights as already on the Paceman, will be added soon to the JCW Coupe as we prepare him for his next European tour in August.

I’m 55 and still love my toys. As an 11 year old boy I used to catch the bus from my village of Penketh into our local town Warrington to go to the Saturday morning Cinema Club where we watched old Flash Gordon episodes. God I felt so grown up. Now with my new  auxiliary dials, I am that boy again. I no longer get in a MINI, I now get in my Flash Gordon space rocket and fly! When I reach work, as I drive up to the main entrance the front of the Paceman or Coupe is reflected back at me and I get a pathetically huge amount of pleasure from seeing the round daylight driving lights reflecting back at me. At night coming home from an evening out the main beam goes on and with the additional driving lights on the Paceman it turns into a scene from ET as the whole world around us lights up.

Only one way to finish this blog for today and that is to share the conclusion that has just occurred to me… Mrs. P clearly has her very own driving lights attached, because whenever I see her she lights up my world. She lights my world bright and strong, she takes the gloom from the edges as we look at the road ahead together. Odd you might think that I count myself as a lucky, lucky man.

Take care till I ramble again. x


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Life Blog – The Latest CT Scan

  
I had my latest scan on the 29th and yesterday I saw the consultant for the results.

Well I won’t beat about the bush it wasn’t good. The latest chemo is not stopping the tumour in my liver from growing. It’s now 44mm as against 33mm last time. However, whatever is knocking about in my lungs is being held in check. The consultant asked me lots of questions about how I am coping with the chemotherapy and my energy levels. Well yes I get a runny nose and runny eyes. I get sore feet and hands, I do get tired. But overall I maintain a good quality of life. I still work and still have fun and still look very well. 

He took all this on board and outlined some options. Well… My worry was being written off – you know 8 months on chemo or 6 months without. Phew there were options, so I got my upbeat face on and heard them through. 

First he is checking on the previously removed tumours. If they have a certain quality about them, then they have a very effective drug for treatment. We will know in a fortnight. This is a bit of a long shot to be honest. 

Secondly, if this isn’t a goer we revert to the very first chemo I had. This was all guns blazing and knocks you about but I wasn’t too bad so bring it on. 

Thirdly, there is a glass bullets options. Small glass beads thinner than hair are inserted into the tumours via the groin and slow release radiotherapy into the tumour. This is a one off treatment which can have great results. As with all these things sometimes it’s great sometimes it isn’t. This is done at Oxford. Yep I’m up for this, so he’s going to make enquiries. Because the chemo is holding the lung nonsense this could be good.

Fourthly, it’s clinical trials. Fourthly to me to be frank means we don’t have many stops before we reach the end of the line, so first let’s change the chemo again and let’s look at shiny glass beads full of kick ass radioactive isotope yttrium-90. Yep I can see a good party line there, so I’m really keen on a bit of this!

  
So that’s where we are. So how do you cope with that hanging over your head? Well quite easily when you are married to a beautiful lady. You have a hug, you grab a kiss, you take a furtive glimpse at one of her lovely smiles and suddenly you are empowered.

Life is to be lived, what we can’t affect we can’t spend time worrying about, so we bring on the fun and it’s a long list. Hot date at the pictures tonight with Mrs P, Chateau Impney hill climb at the weekend, weekend break in Berlin at the end of the month, MINI car meets at Santa Pod, Castle Coombe and Cardiff Bay this Summer and a fortnight in France and Italy in September. And that’s just off the top of my head. We pack the fun in and for a bit of extra fun we have Peanut’s daughter hanging around with us for the Summer!

So make sure you join me in having loads of fun this Summer and if you are at any of the events above come and say Hi – I’m the handsome guy hanging onto the lovely Lady Peanut!